In 2006, Dr. Daniel Gibbs began to notice a peculiar change in his ability to smell. It wasn’t the lack of smell, but rather a strange combination of scents – perfume mixed with baked bread – that alerted him something might be amiss. As a neurologist based in Portland, Oregon, he recognized this as an olfactory hallucination, signaling potential issues with his brain function. Though initially, he thought this might be due to aging, at 57, he was aware he was too young to naturally lose his sense of smell. While early signs of Parkinson’s disease include loss of smell, it wasn’t the condition he was dealing with. Instead, Gibbs was experiencing the early stages of Alzheimer’s disease, though it would take six more years for him to receive that diagnosis. Now, he shares his journey through a book, a documentary, and a blog to raise awareness of living with Alzheimer’s.
Recently, Gibbs discussed his insights and strategies for managing Alzheimer’s with his wife, Lois Seed, in “The Experts Say,” a series by the American Heart Association News, where professionals share personal applications of their expertise. Their conversation, refined for clarity, sheds light on Gibbs’ experience.
When exactly did you ascertain that your symptoms were linked to Alzheimer’s? In 2012, during a genealogical project, Lois and I underwent genetic testing. To my shock, I discovered I carried two copies of the APOE4 gene, greatly increasing my risk of developing Alzheimer’s. At the time, I showed no cognitive impairments and was actively working as head of the neurology resident training program at Oregon Health and Science University. Despite the demanding schedule, I managed my responsibilities effectively.
Upon learning about my genetic predisposition, my first step was to undergo cognitive testing with a colleague. Normal results reassured me, with the exception that my verbal memory was around the 50th percentile, hinting at a developing issue. Discussing this with my department chair made me realize the risks, prompting my retirement in 2013.
Lois pointed out my decision to explore clinical studies focusing on pre-symptomatic stages of Alzheimer’s. I joined a longitudinal neuroimaging study at the University of California, San Francisco, and was later part of a clinical trial for an anti-amyloid antibody drug, now approved for early Alzheimer’s treatment.
How do you combat the progression of the disease? It’s straightforward: lifestyle changes beneficial for heart health also support brain health. Key factors include regular aerobic exercise, a Mediterranean-style diet or MIND diet, stimulating mental activities, social engagement, and sleep. Managing cerebrovascular risks like diabetes, hypertension, high cholesterol, obesity, and smoking is crucial. A healthy heart fosters a healthy brain.
Incorporating these habits into daily life, I walk regularly with my dog, Jack, adding some solo walks when needed for added exercise. Pandemic restrictions paused my gym routine, but I now focus on home workouts. Resistance bands and tai chi comprise my regimen, though the latter’s brain benefits are less visible. Lois ensures I maintain a nutritious diet in line with the MIND guidelines, emphasizing whole grains, vegetables, and lean proteins, while avoiding red meat. A loss of smell and taste means my meals are quite repetitive but satisfying. Alcohol, a former fondness, has also been cut out.
Anticipating the disease’s progression is tricky since earlier diagnoses are relatively new, altering typical expectations. Lois and I discuss how Alzheimer’s dementia evolves: from emotional memory retention to struggles with names and routine tasks. Currently, I am diagnosed with mild Alzheimer’s dementia, impacting daily management but not self-care. nnThough cognitive challenges grow, I continue sharing my experience through talks and screenings, supported by Lois who aids with preparation and delivery. Every new hurdle becomes a collective journey in our shared story, ensuring knowledge and understanding guide us forward.
This account reflects one’s navigation of Alzheimer’s, highlighting personal resilience and communal support vital in maintaining a fulfilling life.